In support of the Framework for Responsible Sharing of Genomic and Health-Related Data, P3G-IPAC* prepared 3 consent tools for the Global Alliance for Genomics and Health. The first, on Legacy Consent and International Data Sharing (A), covers situations where researchers already have data collected using older “legacy” consents. The second, on Clauses for International Data Sharing (B) addresses situations where researchers wish to add clauses on international data sharing to actual consents. The third, a Generic International Data Sharing Prospective Consent Form, provides a generic template for new, prospective studies (C). All will require local adaptation.
*Public Population Project in Genomics and Society: International Policy interoperability and data Access Clearinghouse
You can access these consent tools by clicking on the following ling: