DOWNLOAD: ADA-M Guidance text
The “Automatable Discovery and Access (ADA)” Task Team of the Global Alliance for Genomics and Health is working with the International Rare Diseases Research Consortium (IRDiRC), to create tools that can increasingly automate the discovery and access of biomedical resources (e.g. data, biological specimens, subjects, software). Core to this is the development of an "Automatable Discovery and Access Matrix (ADA-M)”, via which consent and other conditions of use can be represented in a standardized, computer-readable manner. The ADA Task Team is co-chaired by Anthony Brookes (University of Leicester) and John Wilbanks (SAGE Bionetworks), and coordinated by me (Emily Kirby, P3G), and involves over 40 other international leaders with expertise in data sharing issues.
We are seeking Alpha-testers who are resource stewards, operating in a range of different data/resource discovery and data sharing settings.
Any feedback or testing results should be sent to Emily Kirby (email@example.com) and will be critical in helping us to understand the utility and/or limitations of ADA-M 0.2.
Subsequently, based on feedback received, we will improve the design of the ADA-M, and develop a related API. Both tools will then be made publicly available to the research community via the GA4GH website (https://genomicsandhealth.org/).